Meeting Date
15th January 2024
Attendees
Jenny Rathbone MS
Sioned Williams MS
Ioan Bellin – Office of Delyth Jewell MS
Sarah Hatherly –Senedd Research
Amanda Davies – Swansea Bay UHB
Bronwen Davies – Abortion Rights Cardiff
Alison Scouller – Socialist Health Association Cymru
Andrew McMullan – BPAS
Tessa Marshall – Breast Cancer Now
Kayleigh Williams – Community Pharmacy Wales
Helen Perry – NYAS
Pauline Brelsford – Abortion Rights Cardiff
Georgia Walby – Long Covid Wales
Jan Russell – WAMES
Louise Morgan – Long Covid Wales
Ruth William – Long Covid Wales
Dee Montague-Coast – FTWW
Rebecca Davies – Action for M.E
Julie Richards – Director, RCM
Debbie Schaffer – FTWW
Lucy Grieve – BPAS
Summary of issues discussed
· Topic on Long Covid, CFS, ME and the effect on women
· Presentations by Jan Russell from WAMES, Rebecca Davies from Action for ME, and Georgina Walby, Ruth William, and Louise Morgan from Long Covid Wales
· Group discussion focussed on support needed for frontline workers that may suffer from one of these conditions, as well as the length of time taken to be diagnosed in many instances. Points were also raised about the work being done by the Welsh Government, as well as recent advances in the field of women’s health that may help us tackle the issues in the future.
· Bronwen Davies asked if we had received a response from the Minister about abortion progress in Wales following the letter written in November. Lucy Grieve is to chase at report back.
Meeting Date
21st February 2024
Attendees
Jenny Rathbone MS
Eluned Morgan MS
Sian Gwenllian MS
Sioned Williams MS
Helen Fychan MS
Bronwen Davies – Abortion Rights Cardiff
Tessa Marshall – Breast Cancer Now
Viv Rose – BPAS
Alice Fairman – BPAS
Diana Dobryzynska – BPAS
Caroline Sherf – Cardiff and Vale UHB
Judith Cutter – Cardiff and Vale UHB
Sarah Thomas – NFWI
Hanna Andersen – WEP
Rachael Joseph – FTWW
Georgina Forbes – Aneurin Bevan UHB
Beth Hales – FTWW
Anna Cooper - FTWW
Amanda Davies – Swansea Bay UHB
Debbie Shaffer – FTWW
Alison Scouller – Socialist Health Association Cymru
Meena Upadhyaya – FTWW
Lucy Grieve – BPAS
Lisa Nicholls – FTWW
Carina Harigan – FTWW
Willow Holloway – Disability Wales
Dr Aimee Grant – Swansea University
Ceilidh Harris Al Amoodi – SANDS
Sarah Ford – FTWW
Rosie Walworth – RCOG
Dee Montague – FTWW
Sarah Griffith – Cardiff Metropolitan University
Rachel Hawks – Verity PCOS
Jade Heffron – Endometriosis UK
Sofia Gamiero – Cardiff University
Donna Davies – FTWW
Jane Dickson – Aneurin Bevan UHB
Jill Rundle – NWFI Wales Committee
Councillor Jasmin Chowdhury – PHW
Rhiannon John – FTWW
Julie Richards – FTWW
Helen Perry – NYAS
Sarah Anne Evans – FTWW
Louise Evans – FTWW
Jacky Boivin – Cardiff University
Judith Cutter - RCM
Summary of issues discussed
· Development of the Women’s Health Plan for Wales
· Remarks by Minister for Health and Social Care, Elenud Morgan MS
· Open discussion formed the majority of the meeting and focused on the timeline for development of the plan and implementation, as well as the postcode lottery of abortion services across Wales. Questions were also raised around the discovery report and the importance of co-production with specialist organisations (such as endometriosis and breast cancer charities that work directly with those with lived experience)
· Letter of response from the Welsh Government about abortion care targets was disseminated amongst CPG members and was noted by people in the meeting
Meeting Date
18th July 2024
Attendees
Jenny Rathbone MS
Sioned Williams MS
Hannah Jarvis – Office of Laura Ann Jones MS
Jenny Shaw – FTWW
Elizabeth Bruen – Cardiff & Vale UHB
Eimar Mulholland – Hywel Dda UHB
Alison Scouller – Socialist Health Association Cymru
Lara Morris – FTWW
Bronwen Davies – Abortion Rights Cardiff
Rachel Joseph – Cardiff University
Sarah Hill – UHW
Carly Crocker – Endometriosis Wales
Andrew McMullan – BPAS
Amy Dowzell – FTWW
Annie Roberts – FTWW
Debbie Shaffer – FTWW
Sarah Thomas – NFWI
Dee Montague-Coast – FTWW
Jo Campion – Endometriosis UK
Louise Evans – FTWW
Lydia Sold-Evans – FTWW
Toria Collins – FTWW
Katherine Gale – NHS Wales
Cath – WRN Wales
Helen Munro – NHS Wales
Chloe Middleton – FTWW
Catherine Wadmore – FTWW
Emily Manning – FTWW
Julie Richards – RCM
Helen Evans – FTWW
Lucy Ward – BPAS
Summary of issues discussed
· Topic of endometriosis
· Presentations by Debbie Shaffer from FTWW, Rachel Joseph from Cardiff University, and Dr Helen Munro from NHS Wales’
· Discussion focused mainly on the diagnostic and treatment time in Wales and the lack of resources despite assurances from the government. A number of members shared stories of their own battles with endometriosis, and nurses also shared their own experience of working within the service. Cost of specialist services raised as a large contributing factor to delays in diagnosis. It was decided that the CPG would write to the government about endometriosis and the timeline for the implementation of endometriosis-specific nurses in health boards
· Bronwen from Abortion Rights Cardiff wanted an update from the questions that were asked to the Minister at the February meeting about abortion targets and mid-trimester commissioning. It was agreed that a letter would be sent to the Minister before the next meeting regarding this and questions arising about endometriosis
Meeting Date
28th November 2024
Attendees
Jenny Rathbone MS
Sioned Williams MS
Laura Anne Jones MS
Rebecca Steinfeld – BPAS
Haleema Khan – NHS Confederation Wales
Catherine Larkman – WRN Wales
Andrew McMullan – BPAS
Rachael Clarke – BPAS
Bronwen Davies – Abortion Rights Cardiff
Debbie Shaffer – FTWW
Libby Humphries – Cardiff University
Leanne Prigent – NHS Wales
Molly Fenton – LYP Campaign
Eileen Munson – Menopause Specialist
Rhiannon Fisher – FTWW
Alison Scouller – Socialist Health Association Cymru
Annie Roberts – Wales Online
Viv Rose – BPAS
Emily Manning – Endometriosis UK
Pauline Brelsford – Abortion Rights Cardiff
Louise Allen – NHS Wales
Sally Irving – NHS Wales
Dr Jane Dickson – NHS Wales AB UHB
Dr Amanda Davies – NHS Wales SB UHB
Bianca Armitage – RCM
Summary of issues discussed
· Topic of contraception
· Presentations by Dr Rebecca Steinfeld from BPAS, Louise Allen from the Welsh Government/Cardiff and Vale UHB, and a pre-recorded video from Professor Christopher Barratt
· Discussion focused mainly on the increasing role of the pharmacy in the provision of contraception across Wales. Barriers such as finance and medicine licensing were also raised.
The NGOs linked to the group are listed above as members and/or when they have attended our regular meetings. No special meetings were held with NGOs or lobbyists.
Chair: Jenny Rathbone MS
Secretary: Lucy Ward, British Pregnancy Advisory Service
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DETAILS |
COST |
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Expenses |
Cost of refreshments and canapes for in-person meeting at the Senedd for February meeting |
£297.90 |
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Cost of all goods |
No goods purchased |
£0 |
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Benefits received by the group of individual members from outside bodies |
No benefits received. |
£0 |
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Any secretariat or other support |
No support charged |
£0 |
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TOTAL COST |
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£297.90 |